Wednesday, March 16, 2016

Gyaan Budhwaar - Sangeeta


Sangeeta gave us a beautiful talk on how she went from fear to a state of love while raising her son. As a young mother she went to meet a doctor in Dubai who insensitively showed her a video of an adult autistic man chewing paper staring blankly in a window. This scared and instilled fear in her. That fear, she feels was present constantly, whether it was when she took her kid to public places or traveled. 



Then a homeopathic doctor changed her perspective when he would ask her about her son's fear levels. So from worrying about delayed milestones and teaching objectives, she started getting sensitive to how the child felt and started connecting with him. 

She also felt a lot of negativity while teaching the child and this she felt affected him further. Then she read books like 'The Biology of Belief' by Bruce Lipton and this made her realize that her own negativity and projection was causing self-fulfilling outcomes. She says the energy you give out to the universe, comes back to you. If the child is taught with a belief that he will learn, it will have a better outcome than otherwise.

She found that she went from the stages of a fear for what was going on with her child, to being an activist-type mom- gearing to fight with anyone who didn't make allowances for her special child, to finally a state of acceptance of both the child and the world.

She feels autistic children live in a higher dimension and can sense energy patterns of people around them. She has studied that her son is able to gauge her inner condition and reacts to the same. This has made her also more aware of the various turbulent forces inside her. 

She suggests yoga, meditation and prayer as means to change the negative vibrations in us and do those as a practice. She conducted a half hour meditation exercise, which was focused on feeling rather the thinking through our environment and connecting with the feelings of the child, energetically.

She gave us a few mantras that have improved her life, one being-'Be the change, you want to see in this world'.

In Sangeeta's own words-

'In humans, the extremes of the two polarities might appropriately called Love and Fear'.  Love fuels growth while Fear stunts growth.  
-Bruce Lipton

Fear and Autism and how we can move from FEAR CONSCIOUSNESS TOWARDS LOVING CONSCIOUSNESS.
Temple Grandin has mentioned in her book 'Thinking in Pictures' - The Principal emotion experienced by autistic people is FEAR. Fear is the foundation of many other feelings like anxiety,rage and even depression.
The emotion of fear is experienced by both child and parents at different levels.

FEAR FROM CHILD PRESPECTIVE :
Sensitive child who is born healthy and happy slowly slips into autism kind of condition.This happen in general between age of 1 to 2, some case it happen little late , child is diagnosed at the age of 3 or even 4.
Why it happens is a big question.

I feel, maybe the child experienced an extreme psychological stress during this time , the reason may be too many compulsory and optional vaccines or other environmental, emotional toxins .With this extreme stress at such a tender age, on a sensitive body, becomes too much to handle, the child's autonomic nervous system slows down. The child starts shutting down self from external environment . It effects his motor movement, sensory system. Child develops certain strategies to cope up with FEAR like stimming, running around, flapping etc. On the basis of these symptoms, we label child Autistic.
There is no autism when child is in a stress-free, calming environment .
Dr Shankaran, a homeopath from Mumbai first pointed towards this mental state of FEAR, to me, when my son was under his treatment for his autistic traits. 

Dr Paul Herscue has connected  the emotion of fear and autistic symptoms very well in his book 'Stramonium'.
Its quite possible that due to certain reasons, extreme physiological stress makes the child pushed into the autism condition and then it becomes a vicious cycle, difficult to break.

The first requirement is to support and help such a sensitive and conscious child and provide him with a calming environment at school and home.
Introducing more right- brain oriented activities, like soothing music, arts and dance, horse riding, swimming in his life.
To de-stress deep pressure massage along with acupressure in everyday basis also helps.
We can use Essential Oils for healing touch.
Acceptance and loving environment, free from toxic emotions are few steps we can take to help the conscious child.

FEAR FROM PARENT PRESPECTIVE
After this labelling, parents are under constant stress and they also experience lots of toxic emotions like anger frustration, anxiety, mental chaos.which again comes from FEAR deep inside the brain.fear of loosing a normal child, social fear like what people with think about my child 's behavior , how he /she will be toilet trained ?will he / she get admission in school? Will he / she have playmates in life? What will happen to his overall education? What will be his future profession ? Will he/ she will be independent ? What will happen when parents are gone .Fear of failure have experienced , when child experience life differently and learn differently and as a parent we find difficult to teach him we develop fear of failure , that scenario we want to teach but we find self not good enough to guide him/ her.We, as a parents need to do lots of inner work to move from Fear consciousness to Love consciousness.

A few mantras which have helped me are-

1.We will get what we believe ...... Recommended reading 'Biology of Belief' by Bruce Lipton and 'Spontaneous healing of Belief' by Gregg Braden.

2 My energy is powerful and can effect my son both ways- positive and negative.There is a need to keep self free from toxic food and toxic emotions.

3.Child is energetically sensitive about what parent feel about him /her. If the parent FEELS he can do this, he will do this, be it academic, sports or anything else.
But if parent believes the child is having some kind of disorder, this conscious child will manifest disorder as part of his personality only, not his strengths.

4.There is always competition with self not with fellow neurotypical parents or Special need parents.  

5. Living in the present ..... Present moment is life ..... Recommended reading 'Awesomism' by Suzy Miller.

6.Living in harmony with plants and animal kingdom. Lots of grounding and connection with mother earth brings happiness and healing. 

7.Be the change you want to see in this world.If u want awareness and acceptance for your child,then accept him the way he is and be aware about his unique personality. ......Recommended reading Lori Shayew's book (to be released soon).

8.All we need is love.... Love for life equality for all.... Recommended reading -'Philosophy of Love' by Dr Haridas Choudhury.
9.Self healing tool : meditation prayers way of life, there is need to create harmony and peace in environment. Physical,Emotional,Mental and spiritual fitness must on part of parent.'








Saturday, March 5, 2016

'Its in in your hands'

We had a program on 5th march wherein Mallika Ganapathy, renowned special educator spoke about how as a parent we should, observe, ask 'WHY?' a child does a certain 'behavior' and try to help the child, instead of always stopping the behavior, in a talk titled 'Sensory Integration Demystified'.



She suggested instead of running around from therapy to therapy, try to help the child at home, doing simple things which help his sensory seeking or overload, by giving more or less of the sense aspect in question ie if a child likes to mash things with his fingers- keep plenty of dough, other soft toys, etc around, letting him get his fill of it, or on other hand he can't stand loud noises, keep headphones with music/ear plugs handy to block out such noise. She said the parent was the prime person to really help the child.



We also had three mom cooperative groups who work together to produce products and one mom who helps her daughter make jewellery.


'Our Spaces' another group displayed their food products, sold yummy cookies and banana muffins.


'Sai Bakery' sold their wonderful cakes, brownies and other goodies.


'Brush with Art moms had an exhibition of their kids works.

The theme of the day was, as parents we can do a lot to help our children lead happier lives, with greater fulfillment and sense of accomplishment. Its up to us.







Wednesday, February 24, 2016

Gyaan Budhwar- Mala


Mala Chinnappa gave us a talk on ‘Education of the Special Child in the light of Spiritual Science’. Her understanding of Rudolf Steiner’s Anthroposophy, Curative education, Waldorf and Camphill schools was explored during the session. She began by explaining that she was still in the midst of the 7 moduled course spread over 3 years. These modules represent seven divisions of seven years each in the life of a human ie 0-7 years, 7-14 years and so on, each division focusing on certain areas of self-development. For example she said, the period 49-56 years is the time one gives back to society what one has assimilated, a time for sharing wisdom, for example.

Steiner developed a model of education for special children based on the study of Theosophy. Karma and reincarnation are key theories of this system and Mala expounded that the spiritual soul takes a human birth but then gets cut off from its spiritual self. This spiritual soul has planned everything for the human including who its parents will be, and other life details so maximum experience and learning can happen for the soul through the birth. This process is cyclical and happens till the soul wants to enjoy the physical life, after which it stops.



Curative is a literally translation of a German word (Steiner being German) ‘healing’. Movement, Rhythm, art, Music and story telling are the soul food which forms an integral part of the education and healing in a day of a person involved with this education- be it student or teacher.

While Waldorf schools are for mainstream kids, Camphill schools are for special kids and adults- a boarding facility with live-in teachers and volunteers.

There are about  a 100 Camphill schools world over, though he number is fastly diminishing. The growth and change that one expects in such schools is for both student and teachers/volunteers. It’s a method of life where one is in harmony with one’s own body and nature, fulfilling our higher purpose in this life.

Mala sang some story- songs to show how both morality and facts could be taught in a playful way. She also showed how movement helps us sense our etheric body and helps the ‘prana’ flow well.



Eurythmy movement was also briefly explored.

In all we got a taste of this unique model of special education which connects us and our kids to our spiritual selves. As Mala put it, we are not humans having a spiritual experience but spiritual beings having a human experience. 


Thank you Mala for an unforgetable session.


Saturday, February 13, 2016

SAND Cafe

Support Alzheimers N Dementia Cafe- the first dementia cafe in Chennai was started at Mitr on feb 13th. This is for caregivers and any patients in a position to come.



We had live music and children with special needs cook and serve us snacks.





This cafe will run only once a month as a meeting point for others in the same boat, to make friends, relax and gain strength from one another.

Our second meeting was a musical one with Sudha and other care givers singing and Vikas playing the keyboard.











Thursday, February 11, 2016

Gyaan Budhwaar-Priya's session



We start a new series of talks by special moms who share their knowledge and their life learnings on various aspects. Priya Sasi lead the first two wednesdays with her wonderful understanding of how a behavior could be due to a sensorial reason and what one can do in such circumstances.


We had an audience of moms absorbing the information and discussing their views.

Following is the article on this topic written by Priya for those who missed being present or want to learn more.

Handling behaviors  - Differentiating between problem behavior and sensory behavior

Behavior is the most common word used in the world of children with special needs.  Anything the child does can be a behavior or simply a verb in English language, is a behaviour. These behaviors gain more importance when it badly affects the child's learning.  As a mother of child with behaviors, I would rather define behavior as a difficulty faced by the child wherein a parent or therapist can help the child to deal with the same. Children diagnosed with autism spectrum disorders depict two types of behavior, sensory  and problem  . It becomes very important to differentiate between these two, to appropriately intervene.

Sensory Behavior : Unlike the neurotypical brain, an autistic brain receives and processes input from seven senses namely visual , auditory, olfactory, tactile, taste, vestibular(movement) and proprioception(balance).  Many times these inputs are being registered as, ‘ insufficient’ or ‘excess’  resulting in  behaviors of seeking and avoiding.

A child who pokes his eyes is getting  insufficient visual input and trying to compensate by poking eyes. On the other hand a child who is covering eyes even from a dim light is getting visual input as excess and hence is trying to avoid it.

A child may scream or bang his head hearing normal sounds in the environment as common as mixie or a cooker whistle because child receives this auditory input as excess and unbearable.  My son used to respond with a loud laughter for a sudden starting sound of a two wheeler or an auto . Though we think these behaviours are bizarre, many times its associated with the senses .
A child who registers smell with more sensitivity can have a tough time to get toilet trained and a child who registers smell with less sensitivity may indulge in inappropriate social behaviours such as continuously touching their private parts and smelling it.

A child who registers tactile input with less sensitivity may avoid wearing slippers and satisfy his need for feeling different textures with a bare foot. A child may avoid messy foods to avoid that sensation . My son has craves for the oily  fumes which comes over dosa, but learnt to make dosa very easily because of this craving.

Most of children who feel their vestibular input less will be constantly is on the move or spin or rock to get vestibular sense compensated. Some children may also be dull as they feel their vestibular input as excess.
Flapping is the most common behavior seen for a proprioceptive input.
A child can also get the same from a sense of balance and hence most children like skating and learn it faster than other skills.
So a sensory behavior will always be connected to seeking or avoiding a particular sensory input while a problem behavior will in no way be connected to satisfy a sensory need .
 Once a behavior is identified as a problem or sensory, it can be tackled by the appropriate method.  Sensory behaviors are addressed by occupational therapists as sensory integration technique and problem behaviors are tackled by behavior modification technique by the special educator.

Solving  the mystery of a behavior may be initially bit tough but if we have a sound knowledge about sensory issues, it becomes easier as days pass by and it requires a careful, continuous and efficient observation of child . Over these years I have intuitively learnt to use their sensory need as a teaching tool and I find it as the most efficient teaching tool for a sensory smart child.

Priya- mom to Pranav.


Monday, February 1, 2016

Art Based Therapy workshop by Gitanjali Sarangan

We had this lovely workshop by Gitanjali- who runs Snehadhara school at Bengaluru, which showed a  bunch of 40 moms how movement, dance, theater and music could be used to teach children in a non-obstrusive and casual manner. http://snehadharafoundation.org/


What will stay with me for a long time is teaching opposites thru music..'Iwill sing loooouuuud.. I will sing soft...I will sing out...I will sing in...'

Sunday, January 24, 2016

Sunday Breakfasts at Mitr


We begin a sunday breakfast service at Mitr, prepared by special kids and supported by special moms.






The MITR Anthem
"Break the Wall"
1. I want to break down walls lord
2. I want to break down walls
3. I want to break down walls lord
4. Oh help me break down walls
5. Between the losers and the winners
6. Between the restless and the calm
7. Between the different and the typical
8. Oh help me break down walls